Living with IgAN

IgA nephropathy illustrative patient


It can be a lot to deal with a disease like IgAN. You may be affected both physically and emotionally. You may feel isolated, anxious, or overwhelmed. Just know that you are not alone. Support is available, and it comes in many forms. This can be from your healthcare team, your family, or online resources and support groups. In particular, advocacy resources can be helpful to people living with IgAN, as it’s a rare disease and many people don’t know what it is. Below are a few resources that may help you on your treatment journey.

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Doctor discussion guide

IgA nephropathy What you need to know Guide Icon

IgA nephropathy
What you need to know

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Detail your symptoms

Discuss your
treatment options

Track your
treatment plan

Find a nephrologist

Looking for more information
to connect?

Links to advocacy organizations to connect with others

Talking to others

Some of the best supporters you have are the people closest to you—your family and friends. If you’re feeling overwhelmed or troubled, sit down with someone you trust and open up. A safe and supportive environment can go a long way toward keeping you on track during your journey.

On the other side of the coin, if your family member is dealing with IgAN, here are some questions you can ask to show your support:

“What can I do to help?”

“Do you need to talk?”

“How are you feeling?”

“How is your treatment going?”

And sometimes, you may not have to say anything. Just lending an ear may be enough for your loved one.

Taking care of your mental and emotional well-being

Sometimes, it can be important to take some time to check in with yourself. Monitoring your mental and emotional well-being can be just as important as taking care of your physical health. Talk to your doctor to see if the below activities could help to manage your stress.

Engage in a deep
breathing exercise

Centering yourself and focusing on your breathing may help manage anxiety.

Go for a walk outside

Take in the sights and sounds of your surroundings. Connecting with nature can be beneficial to your well-being.

Do some low-intensity exercise

Along with helping to improve your physical health, exercise releases endorphins that can make you feel better.

Watch a movie
or listen to music

Sometimes, taking your mind off things by getting lost in a story or a song can help your mental health.